Firstly I haven’t posted in ages and you’ll get to that point in my life in a couple of posts, but I think now you will have to forgive me for irregular random entries in my story, all will be explained. But for now, let me share the first factor in that.
I said in my last post, that I felt more capable of working when I went on to Himera, and you may remember a little while ago I told you the story of how when I was getting sicker I gave up a much better paid job, which involved travelling, for a local job, which didn’t make me feel so ill, as I didn’t have to get up early, or endure the physical demanding element of getting myself up to London to present training courses weekly.
But I would be lying to you if I didn’t admit that for the four years I was in that job, I hated opening my pay packet, because I knew I was capable of earning far more and having a much better life style (but health isn’t worth giving up for money). But now…. Now… I was much better again, so what do you think I did. Stay in that lower paid job? No, of course I didn’t. I got a better paid job again!!!
I can’t tell you how thrilled I was to be able to stop worrying about money and start feeling proud of myself again.
I do have to travel, and I had a 1 hour 10 min drive into work each day when I started, which was a bit of gamble as I can only comfortably drive for an hour. But I coped, and basically we decided to move house to cut my journey. My wonderful hubby said to me, you’re what’s important if you need to move nearer I’ll do the long journey coming back.
I have to say though when I job hunt I don’t want to be in an organization who doesn’t welcome disabled people. So when I went to the interview, I said, I have a disability, and explained, and explained I couldn’t do really long hours, or lots of travelling, and I couldn’t get in early. I have to say, not only did I get a much better salary, I really fell on my feet with a good employer. They let me start at 10 and work at home two days a week. There are times I have to go up to London, or Southampton, but I get to book the meeting times, so I make them in the afternoon so I don’t have to kill myself trying to get out early when my body still doesn’t really want to do that.
If I don’t have the two days I work at home, I do feel ill then, it starts to compound and my body says, you’re doing too much with one symptom or a another. But believe me I could never have done this job without Himera, and I feel so much better now we have a bit of spare money to spend.
When I went back into the clinic in the hospital, I told them I’m not like some people, able to start running marathon’s, I still can’t do anything excessively physical but I have been able to get a much better paid job. They were pleased for me. And the Doctor said, people begrudge paying for medication, but the money is drawn back if people can keep working and pay tax.
So that’s where I am now, working full-time in a much better paid job, with a bit of a commute.
In my next post –whenever I get that written – I shan’t promise – I’ll talk about my experience with diet.
AS is my burden, writing is my escape.
And if you are looking for the best help to improve your Ankylosing Spondylitis then for me it was the AS course at the Hospital for Rheumatic Diseases in Bath, UK. This hospital is now threatened with closure, if you wish to sign the petition to keep this hospital open, please click here. It changed my life (You can attend as a private patient or on the NHS). And if you would like more information on AS take a look at National Ankylosing Spondylitis Society, NASS, website.
My novella, Captured Love, telling the story of a subsidiary character from Illicit Love is now available on amazon.com/amazon.co.uk and to celebrate I’m running a competition offering giveaways including a night in the Regency Hotel, London, an amazon voucher, and free copies of Illicit Love. Find out all the details here.